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If you want to deal with ankylosing spondylitis then join caasindia campaign


What is caas india campaign?
Campaign Against Ankylosing Spondylitis India (#caasindia) has been started with the aim of resolving the basic problem of AS fighters. Patients do not get affordable and convenient treatment. Apart from this, health insurance facility is also not available. The patients are unable to bear the expenses due to the High cost of effective Biologics in easing the lives of the fighters fighting the disease. The related issue has been raised in front of the Government of India and the Ministry of Health under the campaign. The government has accepted our memorandum. The matter is pending with the Health Ministry. In order to meet our demands, we needs to show the magnitude of the disease in front of Government.
💢 #caasindia has demanded the following from the Indian government for the #AS affected:
1. Convenient and readily available treatment facility
2. Convenience of #healthinsurance coverage for all classes of AS patients.
3. #Biologics can be provided at controlled and affordable prices.
4. Priority in the treatment of any health institution like cancer and heart patients
5. Start of #rehabilitation program for #ASpatients
6. To include AS in National Health Policy
Why do we need a campaign?
Several groups and pages are being operated in the name of ankylosing spondylitis welfare on various social media platforms, but there were only general discussions. While we need to understand the basic problem of patients suffering from ankylosing spondylitis .We need regular treatment.
 Due to costly treatment, 95 percent of the people are deprived of treatment. Consequently, he is compelled to live in pain all the time. Their physical structure is affected. Due to which their social and economic life is affected. In such a situation, the patient suffers from being monotonous and isolated.
Challenges:
There is also lack of awareness among ordinary people and doctors against ankylosing spondylitis. Because of which the disclosure is delayed and then the condition of the patient has been affected.
The government also sees this disease as normal arthritis. As a result, this disease has been de-listed by the IRDA. Consequently, patients are not getting health insurance facility. On the other hand, the price of biologics available to prevent the progression of ankylosing spondylitis is so high that it is not possible for 9 7% of people to buy it. Not only this, there is also a huge reduction in the disease experts in the country. There is also indifference towards the rehabilitation process across the country. You all know how important physiotherapy is for patients suffering from ankylosing spondylitis, but physiotherapy is not possible for everyone on a daily basis. The economic condition of patients is the main reason behind this.
Please support us
We have developed a national level group on whatsapp group. This group is being operated by the name Helpline. Apart from this, a Twitter handle related to the campaign is also being operated. We are present on all social media platforms including YouTube, Instagram, Facebook. If you are also struggling with ankylosing spondylitis, then be part of this campaign.
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Comments

  1. Unknown17 September 2018 at 14:49

    I am with CAAS India Group and need help from government of India and NGO's to look into this autoimmune disease named Ankylosing Spondylitis and provides as demanded by this group.

    ReplyDelete
    Replies
    1. caas india17 September 2018 at 15:01

      Thanks for the support. ..Please add other people from caasindia

      Delete
    2. Unknown17 September 2018 at 19:43

      Already added two person in your fb page.

      Regards,

      Ravi Tiwari

      Delete
  2. caas india17 September 2018 at 19:46

    thanks ravi!!

    ReplyDelete
  3. Unknown18 September 2018 at 11:20

    I suffer with this disease and trust me more people need to know about it

    ReplyDelete
    Replies
    1. caas india19 September 2018 at 07:17

      You are right. Awareness is very important. This effort is related to making people aware. Please add other people to this blog too.

      Delete
  4. Unknown20 September 2018 at 12:42

    Thanks for this Movement. We are with you at all times.

    ReplyDelete

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