The effect of ankylosing spondylitis: The young civil engineer was forced to stay in the old age home

 Disabled due to lack of treatment
 Nothing worked, government health plans
 Ayushman Bharat Scheme did not get help from

Ankylosing spondylitis  (Auto Immune Disorder), by a promising civil engineer, not only snatches his dreams from life, but only at the age of 40, he forced him to stay in the old age home.

It is shocking to know that such condition of Sachin Gangaram Fatangare, resident of Sangamner Taluka, Maharashtra, has happened in the absence of treatment, when the government in the country is claiming free treatment for the needy through the Ayushman Bharat Scheme.

Two big reasons are more responsible for the dark future of young people suffering from ankylosing spondylitis like Sachin. This is due to government neglect and costly treatment. Now the question is, in a country where the youth suffering from the disease is struggling so much, how easy will it be for the development of that country?

This story of Sachin Gangaram Fatangare is proving to be a great embarrassment for the health system of the country because the health plans in the country are not of any use to it. According to Sachin, whenever he applies for any health plan for his treatment, the concerned officer rejects the application by disqualifying him for the scheme.

In this regard, Sachin also wrote a letter to the PMO, but he did not get help from there too. In such a way, the issue of how it will be treated remains a puzzle. Sachin is currently pleading for help on social media for his treatment. They need an instant hip transplant. According to the doctors, after surgery, Sachin will be able to stand on his feet and move on.

Disclosure of ankylosing spondylitis at age 26:

sachin gangaram fatangre at oldman's home mumbai 

In 2009, Sachin Gangaram Fatangre (26 years) lived happily with his parents and younger brother in Sangamner, his village, about 50 km from Sirdi (Sai ​​Dham). He did a diploma in civil engineering. After that, started a job in a private company. In 2010, suddenly his health became poor. Back pain with weakness problem troubled Sachin. When the doctor examined it, he found that his hemoglobin had reached level 5. After doing a lot of health check, the doctor made MRI, then he got a doubt. The doctor asked to go to Mumbai and contact the good specialist.  visiting the city and consulting the specialist, after looking at all the investigation reports, they advised him to check the HLA-B27. It is clear from the investigation report that Sachin is suffering from ankylosing spondylitis (HLA B-27 positive).

All joints have been fused
Sachin has become a victim of disability : 
 In the year 2012, Sachin's health has once again worsened. He approached a bone specialist with her problem. During this, Sachin was coughing with weakness. The doctor advised to make lung X-rays. After looking at the report, the doctor started treatment for tuberculosis.

According to Sachin, his condition worsened after taking treatment related to tuberculosis. They were completely bed-ridden. In the meantime, he had to lose his job (Rs 20 thousand per month per month).

Over time, along with Sachin's spinal cord the other joint also got fused. His spinal cord forwarded bend. Due to weakness the body started appearing like a skeleton.

Relatives sent to old age homes in fear of bad disease : 
Sachin's trouble did not end here. After getting rid of the bed, his relatives felt that he was hit by a fatal illness like AIDS. People began to make a variety of things by looking at him. In such a situation, the family members stopped Sachin in a room. Where he became a victim of despair and loneliness. After some time, the information of an old age home was received through a medium. He got the information that the Ashram Operator would take care of Sachin's lifetime by paying a sum of 1.5 lakhs. Sachin told his family that he would leave him in the ashram. At least they will not have to get embarrassed. The relatives also handed over Sachin Fattangare to the ashram managers with a sad heart. According to Sachin, his family comes to the Ashram to meet him once in three months.
Sachin says that he feels better than the house here. Desperation and loneliness in one of the rooms in the house had grabbed them but people were there to talk to them in the ashram. Take a look at television to entertain.

Health insurance coverage not available for AS patients : 

Ankylosing spondylitis is under a group of diseases known as inflammatory arthritis. This disease is categorized under auto immune diseases in which patients suffer from unbearable pain in spine and joints as this disease mainly affects spinal cord. 

Due to Ankylosing spondylitis healthy young person becomes partially disabled at a very young age and is forced to leave his job, talent and social interactions and compelled to live an isolated life.

this is a chronic incurable disease, cause of which is still not known after several years of research. 

This disease is managed by rheumatologist but unfortunately availability of doctors specializing in Rheumatology is very limited.

The treatment of this disease is very expensive and is not even affordable for even a person earning  lakhs of rupees per month. 

The last hope of patients is Biological Injections which provide some relief and helps the patients to lead sufficient pain free life. The cost of prescribed dosage (5mg/kg) of Biological Injection is around 1 lakh rupees.

It is really very unfortunate and a matter of great concern that the treatment for this disease is not covered under health insurance scheme because this disease is listed under D list by IRDA.

Ankylosing Spondylitis is also not included under critical diseases List even though it makes the life of young patients like living in hell. 

In many countries of world, after understanding it's seriousness, this chronic disease has been included under national health policy as well as considered as a critical disease. Specialists believe that it is wrong and unscientific not to consider Ankylosing Spondylitis  as a critical disease. 

You will be surprised to know that the Youth between the age of 15 to 44 years are mainly affected by this disease. According to estimation of specialists almost 25 to 30 thousand people get affected by this disease every year. 

Latest update - We are very sad to inform you that Sachin is no more in this world. He has passed away tragically.

Need 

Financial help for joint replacement 

• Documental evidence 02  

Documental evidence 01  

amount 9 Lakhs :

• 
  

  • 
    
    
• 
  
• 
  
• 
  
• 
  
• 
  
• 
  
• BANK ACCOUNT DETAILS : 

SACHIN PHATANGARE

SBI AC NO 33039040897

RAJUR BRANCH

IFCS CODE:- SBIN0005399

PAYTM NO 

9987780078

__________________________________________

JOIN caasindia campaign  on : 

twitter 

facebook page 

join our facebook group 

subscribe our youtube Channel